EURORDIS-Rare Diseases Europe: 10th European Conference on Rare Diseases & Orphan Products – The rare disease patient journey in 2030

15-16 May | Online


In the context of the current COVID-19 pandemic and in line with WHO guidelines, the upcoming ECRD will now take place ONLINE on 14-16 May (Full statement).

The health and safety of all stakeholders participating in ECRD, including people living with a rare disease and their carers, is our primary concern.  

To note:

  • The price structure of fees to attend ECRD online will be revised to reflect the change in event format. If you have already registered, you will receive information regarding a reimbursement of the difference in cost for registration.
  • Details of updated fees and how to participate online in the ECRD will be made available via by email to participants that have already registered. 
  • Anyone who has reserved a hotel through Meetagain, our official hotel contractor, can contact ecrd-housing@meetagain.sedirectly to claim a reimbursement by 1 April.


The European Conference on Rare Diseases & Orphan Products (ECRD)* is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

The event draws together more than 800 participants from over 50 countries around the world. Leading, inspiring and engaging all stakeholders to take action, ECRD is where innovative solutions in the rare disease field are born. The Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, policy makers, researchers, clinicians, industry representatives, payers and regulators.

People living with a rare disease have the right to reach their highest potential of well-being; join EURORDIS-Rare Diseases Europe for ECRD 2020 to take part in discussions to inform and build the future ecosystem for rare disease policies and services.

Register here.

More information.

*Social Platform is an Associate Partner of ECRD 2020.